Effects of An Educational Programme on Knowledge of Cerebral Palsy among Informal Caregivers of Children Presenting at Selected Physiotherapy Clinics in Ibadan



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Submitted Mar 8, 2022
Published Mar 31, 2022
10.24018/ejmed.2022.4.2.1275

Abstract viewed = 651 times

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Background: Children with Cerebral Palsy (CP) often require assistance from their informal caregivers to perform age-expected functions. These caregivers require sufficient knowledge of CP to effectively perform their roles. Effects of a structured education programme to improve CP knowledge among caregivers have been separately studied using single-module and multi-module educational programmes Information is however scarce on their differential effects.

Objective: To compare the effects of single and multi-module educational programme interventions on the knowledge of CP among their informal caregivers.

Methods: A quasi-experimental design involving 40 consecutively sampled informal caregivers of children with CP. They were assigned into either the single-module or the multi-module educational intervention groups. Baseline and post-intervention knowledge of CP were assessed using the Knowledge of Cerebral Palsy Questionnaire and compared using Wilcoxon signed- rank test and Mann-Whitney U test at p=0.05.

Results: There was a significant within-group increase in the knowledge of CP in each of the two groups (p=0.001). Between-groups comparison revealed no statistically significant difference in the effects of either models (p= 0.26).

Conclusion: The single-module and multiple module educational programme are equally effective in improving knowledge of CP and should be incorporated into the total management of CP.

Keywords: Caregiver, cerebral palsy, disease knowledge, education

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References

  1. Donald KA, Kakooza AM, Wammanda RD, Mallewa M, Samia P, Babakir H, et al. Pediatric cerebral palsy in Africa: Where are we? J Child Neurol. 2015; 30(8): 963-71.
    DOI  |   Google Scholar
  2. Lagunju I, Oyinlade A, Famosaya A. Cerebral palsy in Nigerian children: profile and impact on educational opportunities. DMCN. 2016; 58: 55.
    DOI  |   Google Scholar
  3. Papavasiliou AS. Management of motor problems in cerebral palsy: a critical update for the clinician. Eur J Paediatr Neurol. 2009; 13(5): 387-96.
    DOI  |   Google Scholar
  4. Damiano DL. Rehabilitative therapies in cerebral palsy: the good, the not as good, and the possible. J Child Neurol. 2009; 24(9): 1200-4.
    DOI  |   Google Scholar
  5. Das SP, Ganesh GS. Evidence-based approach to physical therapy in cerebral palsy. Indian J Orthop. 2019; 53(1): 20-34.
    DOI  |   Google Scholar
  6. Dambi JM, Mlambo T, Jelsma J. Caring for a child with Cerebral Palsy: The experience of Zimbabwean mothers. Afr J Disabil. 2015; 4(1): 1-10.
    DOI  |   Google Scholar
  7. Hamzat TK, Fatudimu MB. Caregivers or care providers: Who should assess motor function in cerebral palsy? Journal of Pediatric Neurology. 2008; 6(04): 345-50.
    DOI  |   Google Scholar
  8. Palisano R, Almarsi N, Chiarello L, Orlin M, Bagley A, Maggs J. Family needs of parents of children and youth with cerebral palsy. Child: Care, Health And Development. 2010; 36(1): 85-92.
    DOI  |   Google Scholar
  9. Baird G, McConachie H, Scrutton D. Parents' perceptions of disclosure of the diagnosis of cerebral palsy. Arch Dis Child. 2000; 83(6): 475-80.
    DOI  |   Google Scholar
  10. Reinhard SC, Given B, Petlick NH, Bemis A. Supporting family caregivers in providing care. Patient safety and quality: An evidence-based handbook for nurses. 2008.
     Google Scholar
  11. Wright AA, Zhang B, Ray A, Mack JW, Trice E, Balboni T, et al. Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA. 2008; 300(14): 1665-73.
    DOI  |   Google Scholar
  12. Dambi JM, Mandizvidza C, Chiwaridzo M, Nhunzvi C, Tadyanemhandu C. Does an educational workshop have an impact on caregivers’ levels of knowledge about cerebral palsy? A comparative, descriptive cross-sectional survey of Zimbabwean caregivers. Malawi Med J. 2016; 28(4): 167-73.
    DOI  |   Google Scholar
  13. Olaleye OA, Hamzat TK, Oloso MO. Perceived quality of physiotherapy services among informal caregivers of children with cerebral palsy in Ibadan, Nigeria. J Pediatr Rehabil Med. 2015; 8(3): 227-34.
    DOI  |   Google Scholar
  14. Zuurmond M, Nyante G, Baltussen M, Seeley J, Abanga J, Shakespeare T, et al. A support programme for caregivers of children with disabilities in Ghana: Understanding the impact on the wellbeing of caregivers. Child: Care, Health and Development. 2019; 45(1): 45-53.
    DOI  |   Google Scholar
  15. Olawale OA, Deih AN, Yaadar RK. Psychological impact of cerebral palsy on families: The African perspective. J Neurosci Rural Pract. 2013; 4(02): 159-63.
    DOI  |   Google Scholar
  16. Arora SK, Aggarwal A, Mittal H. Impact of an educational film on parental knowledge of children with cerebral palsy. Int J Pediatr. 2014; 2014.
    DOI  |   Google Scholar
  17. Karande S, Patil S, Kulkarni M. Impact of an educational program on parental knowledge of cerebral palsy. Indian J Pediatr. 2008; 75(9): 901-6.
    DOI  |   Google Scholar
  18. London School of Hygiene and Tropical Medicine and Hambisela. Getting to know cerebral palsy: Working with parent groups—A training resource for facilitators, parents, caregivers and persons with cerebral palsy. [Internet] 2013. [cited on 2021 January 02] Available from: http://disabilitycentre. lshtm.ac.uk/2013/08/01/publication‐of‐getting‐to‐know‐cerebral‐palsy‐ manual/
     Google Scholar
  19. Zuurmond M, O’Banion D, Gladstone M, Carsamar S, Kerac M, Baltussen M, et al. Evaluating the impact of a community-based parent training programme for children with cerebral palsy in Ghana. PloS One. 2018; 13(9): e0202096.
    DOI  |   Google Scholar
  20. Dagenais L, Hall N, Majnemer A, Birnbaum R, Dumas F, Gosselin J, et al. Communicating a diagnosis of cerebral palsy: caregiver satisfaction and stress. Pediatr Neurol. 2006; 35(6): 408-14.
    DOI  |   Google Scholar
  21. Huang YP, Kellett UM, St John W. Cerebral palsy: experiences of mothers after learning their child’s diagnosis. J Adv Nurs. 2010; 66(6): 1213-21.
    DOI  |   Google Scholar
  22. Hamzat TK, Mordi EL. Impact of caring for children with cerebral palsy on the general health of their caregivers in an African community. International Journal Of Rehabilitation Research. 2007; 30(3): 191-4.
    DOI  |   Google Scholar
  23. Adegbemigun OD, Hamzat TK, Olaleye OA. Knowledge and beliefs of informal caregivers of children with cerebral palsy in Nigeria concerning cerebral palsy. Med J Zambia. 2019; 46(3): 172-9.
     Google Scholar
  24. Knoema. Nigeria-Mean Age of Childbearing 1955-2020. [Internet] 2020. [cited on 2021 December 14] Available from: https://knoema.com/atlas/Nigeria/topics/Demographics/Fertility/Age-of-childbearing
     Google Scholar
  25. Naami A. Disability, gender, and employment relationships in Africa: The case of Ghana. Afr J Disabil. 2015; 4(1): 1-11.
    DOI  |   Google Scholar
  26. Opoku MP, Gyamfi N, Badu E, Kwadwo W. They think we are all beggars”: the resilience of a person with disability in Ghana. J Except People. 2017; 2(11): 7-18.
     Google Scholar
  27. Boyko RM, Sodhi S, Herman DJ. Evaluation of an Online Home Caregiver Support Program for Non-Professional Caregivers of Patients With Palliative Care Needs. Am J Hosp Palliat Care. 2021; 38(9): 1099-105.
    DOI  |   Google Scholar